SEEDS

Sharing Essential Education & Data for Sovereignty

The main purpose of this repository is to act as a “one-stop shop” for those who are interested in Indigenous Data Sovereignty and how it relates to the many areas of public health. This repository contains a curated list of resources under the following topics: Health policy, Environmental data, Health equity and social determinants of health, Health education and communication, Epidemiology, Data governance, Surveillance and outbreak response, Disease and interventions. The repository is maintained by the D4I TDR Educational Resources Working Group. If there is a resource that is not included but you think should be, please reach out to us at D4itdr@gmail.com

Database Search

497 results found · Page 2 of 9

Luke, J.N., Ferdinand, A.S., Paradies, Y. et al. Walking the talk: evaluating the alignment between Australian governments’ stated principles for working in Aboriginal and Torres Strait Islander health contexts and health evaluation practice. BMC Public Health 20, 1856 (2020). https://doi.org/10.1186/s12889-020-09983-w
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Cunningham-Reimann, S., Doshi, A., Stutz, S., Tjong, G. B., & Mashford-Pringle, A. (2025). Flipping data on its head: Differing conceptualisations of data and the implications for actioning Indigenous data sovereignty principles. Global Public Health, 20(1). https://doi.org/10.1080/17441692.2025.2450395
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Mays VM, Echo-Hawk A, Cochran SD, Akee R. Data Equity in American Indian/Alaska Native Populations: Respecting Sovereign Nations' Right to Meaningful and Usable COVID-19 Data. Am J Public Health. 2022 Oct;112(10):1416-1420. doi: 10.2105/AJPH.2022.307043. PMID: 36103697; PMCID: PMC9480466.
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Gwynne Evans-Lomayesva, Jae June Lee, & Cara Brumfield. “Advancing American Indian & Alaska Native Data Equity: Representation in Federal Data Collections.” Georgetown Center on Poverty and Inequality, November 2022. Available at https://www.georgetownpoverty.org/issues/advancingamerican-indian-alaska-native-data-equity/.
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Schmit CD, O’Connell MC, Shewbrooks S, Abourezk C, Cochlin FJ, Doerr M, Kum HC Dying in Darkness: Deviations From Data Sharing Ethics in the US Public Health System and the Data Genocide of American Indian and Alaska Native Communities J Med Internet Res 2025;27:e70983
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Riley Taitingfong, Andrew Martinez, Stephanie Russo Carroll, Maui Hudson, and Jane Anderson (2023). “Indigenous Metadata Bundle Communiqué.” Collaboratory for Indigenous Data Governance, ENRICH: Equity for Indigenous Research and Innovation Coordinating Hub, and Tikanga in Technology. DOI: 10.6084/m9.figshare.24353743
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Carroll, Stephanie, Tahu Kukutai, Maggie Walter, Oscar Luis Figueroa-Rodríguez, Jennifer D. Walker, and Per Axelsson. “Issues in Open Data: Indigenous Data Sovereignty.” In The State of Open Data: Histories and Horizons, 300–319. Cape Town and Ottawa: African Minds, IDRC, 2019. https://idrc-crdi.ca/en/books/state-open-data-histories-and-horizons.
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Liboiron, Max, Alex Zahara, Kaitlyn Hawkins, Christina Crespo, Bárbara de Moura Neves, Vonda Wareham-Hayes, Evan Edinger, et al. “Abundance and types of plastic pollution in surface waters in the Eastern Arctic (Inuit Nunangat) and the case for reconciliation science”. Science of The Total Environment 782 (15 de agosto de 2021): 146809. https://doi.org/10.1016/j.scitotenv.2021.146809.
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Curren, Meredith S., Chun Lei Liang, Karelyn Davis, Kami Kandola, Janet Brewster, Mary Potyrala, y Hing Man Chan. “Assessing determinants of maternal blood concentrations for persistent organic pollutants and metals in the eastern and western Canadian Arctic”. Science of The Total Environment 527–528 (15 de septiembre de 2015): 150–58. https://doi.org/10.1016/j.scitotenv.2015.04.079.
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Dallaire, Frédéric, Eric Dewailly, Gina Muckle, y Pierre Ayotte. “Time trends of persistent organic pollutants and heavy metals in umbilical cord blood of Inuit infants born in Nunavik (Québec, Canada) between 1994 and 2001.” Environmental Health Perspectives 111, no 13 (octubre de 2003): 1660–64. https://doi.org/10.1289/ehp.6269.
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Max Liboiron, Nadia Duman, Alex Bond, Louis Charron, France Liboiron, Justine Ammendolia, Kaitlyn Hawkins, Emily Wells, Jessica Melvin, Natalya Dawe, Melissa Novacefski. (2020). Regional Report on plastic pollution in Newfoundland and Labrador, 1962-2019. Civic Laboratory for Environmental Action Research (CLEAR). St. John’s: Memorial University.
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Rodríguez-Báez, Ana Socorro, Susanna Edith Medellín-Garibay, Maribel Rodríguez-Aguilar, Julia Sagahón-Azúa, Rosa del Carmen Milán-Segoviaa, and Rogelio Flores-Ramírez. “Environmental Endocrine Disruptor Concentrations in Urine Samples from Mexican Indigenous Women.” Environmental Science and Pollution Research 29, no. 25 (May 1, 2022): 38645–56. https://doi.org/10.1007/s11356-021-18197-5.
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García-Esquinas, Esther, Marina Pollan, Maria Tellez-Plaza, Kevin A. Francesconi, Walter Goessler, Eliseo Guallar, Jason G. Umans, Jeunliang Yeh, Lyle G. Best, and Ana Navas-Acien. “Cadmium Exposure and Cancer Mortality in a Prospective Cohort: The Strong Heart Study.” Environmental Health Perspectives 122, no. 4 (April 2014): 363–70. https://doi.org/10.1289/ehp.1306587.
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Lopez-Carmen, Victor A., Timothy B. Erickson, Zara Escobar, Anpotowin Jensen, Alexandria E. Cronin, LaShyra T. Nolen, Marcos Moreno, and Amanda M. Stewart. “United States and United Nations Pesticide Policies: Environmental Violence against the Yaqui Indigenous Nation.” Lancet Regional Health - Americas 10 (April 18, 2022): 100255. https://doi.org/10.1016/j.lana.2022.100255.
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