DATA FOR US BY US

"As a collective we are moving Indigenous Data Sovereignty to the forefront of US Federal Data Sharing Policies"

About Us


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    The D4I Tribal Data Repository is a federally funded, Indigenous-led project to establish a data repository in the United States. It is grounded in Indigenous Data Sovereignty and built on the CARE Principles for Indigenous Data Governance, namely:

    01

    Collective Benefit.

    Data ecosystems shall be designed to enable Indigenous Peoples to derive benefit from the data.

    02

    Authority to Control.

    Indigenous Peoples’ rights and interests in Indigenous data must be recognized and their authority to control such data be empowered.

    03

    Responsibility.

    Those working with Indigenous data have a responsibility to share how those data are used to support Indigenous Peoples’ self-determination and collective benefit.

    04

    Ethics.

    Indigenous Peoples’ rights and wellbeing should be the primary concern at all stages of the data life cycle and across the data ecosystem.
    D4I is attempting to solve the problem of extractive data processes and allow tribes to use data for their own benefit, health, economic, and political capital.
    Joseph Yracheta

    The Tribal Data Repository is being led by a team of Indigenous investigators and trusted partners across the United States. It will be made up of de-identified data that was collected as part of RADx-UP projects funded by the National Institutes of Health. RADx-UP was a rapid-response initiative focused on reducing COVID-19 disparities in communities most affected by the pandemic, including Indigenous communities.

    The TDR presents an opportunity to engage Tribal Nations and Indigenous experts to establish a novel and innovative IDSov ethical framework that safeguards Tribal data while respecting and honoring the sovereignty of Tribal Nations and Indigenous Peoples globally through operationalizing CARE principles alongside the FAIR principles of data governance.

    The TDR’s goals are to:



    Data ecosystems shall be designed to enable Indigenous Peoples to derive benefit from the data.


    Build a community of Indigenous health researchers and trusted partners to generate new knowledge that can benefit Tribes


    Learn about rare conditions that are difficult to study in small populations and pool data across Tribes, making it easier to learn about what causes these conditions and how they affect Indigenous people


    Create a strong voice among Tribal Nations to direct federal policy and research priorities
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