Policy
“Indigenous data and health: Critical approaches to ‘race’/ethnicity and Indigenous data governance”
Cormack, D.; Reid, P.; Kukutai, T.Y. Indigenous data and health: Critical approaches to ‘race’/ethnicity and Indigenous data governance. Public Health 2019, 172, 116–118.
Publication Date: 2019
Resource Type: Peer reviewed publication
Indigneous Data Sovereignty Communique
Maiam nayri Wingara Indigenous Data Sovereignty Collective, the Australian Indigenous Governance Institute & the Lowitja Institute. (2023). Indigenous Data Governance Communique. Available at: https://static1.squarespace.com/static/5b3043afb40b9d20411f3512/t/64f7b64b19d9dd4616bf2c75/1693955660219/Indigenous+Data+Governance+Communique+2023.pdf
Publication Date: 2023
Resource Type: Report
Developing a Framework to Guide Genomic Data Sharing and Reciprocal Benefits to Developing Countries and Indigenous Peoples
The O’Neill Institute of National and Global Health Law Georgetown University. Developing a Framework to Guide Genomic Data Sharing and Reciprocal Benefits to Developing Countries and Indigenous Peoples; Georgetown University: Washington, DC, USA, 2009.
Publication Date: 2009
Resource Type: Report
Network for Public Health Law: Tribal Public Health Law Resource Table
No citation available
Publication Date: 2021
Resource Type: Report
Health Insurance Portability and Accountability Act of 1996 (HIPAA)
Health Insurance Portability and Accountability Act of 1996. 104-191, , 1996-08-21, 110 Stat. 1936 (42 U.S.C. 201 note)
Publication Date: 1996
Resource Type: Policy
A Stewardship Framework for the Use of Community Health Data
National Committee on Vital and Health Statistics. A Stewardship Framework for the Use of Community Health Data. December 5, 2012. https://ncvhs.hhs.gov/wp-content/uploads/2014/05/121205lt.pdf
Publication Date: 2012
Resource Type: Report
The National Congress of American Indians Resolution #KAN-18-011: Support of US Indigenous Data Sovereignty and Inclusion of Tribes inthe Development of Tribal Data Governance Principles
Joe Garcia. The National Congress of American Indians Resolution #KAN-18-011: Support of US Indigenous Data Sovereignty and Inclusion of Tribes in the Development of Tribal Data Governance Principles. 2018 https://archive.ncai.org/resources/resolutions/support-of-us-indigenous-data-sovereignty-and-inclusion-of-tribes-in-the-development-of-tribal-data. Last Accessed: June 30, 2025.
Publication Date: 2018
Resource Type: Policy
Best Practices for American Indian and Alaska Native Data Collection
Urban Indian Health Institute. Best Practices for American Indian and Alaska Native Data Collection. Updated on August 26, 2020. https://www.uihi.org/resources/best-practices-for-american-indian-and-alaska-native-data-collection/Last Accessed: June 30, 2025.
Publication Date: 2020
Resource Type: Web Article
Federal Indian Law as Structural Determinant of Health
Hoss A. Federal Indian Law as a Structural Determinant of Health. J Law Med Ethics. 2019 Dec;47(4_suppl):34-42. doi: 10.1177/1073110519898041. PMID: 31955695.
Publication Date: 2019
Resource Type: Peer reviewed publication
Centering Data Sovereignty, Tribal Values, and Practices for Equity in American Indian and Alaska Native Public Health Systems
"Rhodes KL, Echo-Hawk A, Lewis JP, L. Cresci V, E. Satter D, A. Dillard D. Centering Data Sovereignty, Tribal Values, and Practices for Equity in American Indian and Alaska Native Public Health Systems. Public Health Reports®. 2023;139(1_suppl):10S-15S. doi:10.1177/00333549231199477 "
Publication Date: 2023
Resource Type: Peer reviewed publication