Omics
Indigenous Peoples and local commuities as partners in the sequencing of global eukaryotic biodiversity
Mc Cartney, A.M., Head, M.A., Tsosie, K.S. et al. Indigenous peoples and local communities as partners in the sequencing of global eukaryotic biodiversity. npj biodivers 2, 8 (2023). https://doi.org/10.1038/s44185-023-00013-7
Publication Date: 2023
Resource Type: Peer reviewed publication
Balancing openness with Indigenous Data Sovereignty
A.M. Mc Cartney,J. Anderson,L. Liggins,M.L. Hudson,M.Z. Anderson,B. TeAika,J. Geary,R. Cook-Deegan,H.R. Patel, & A.M. Phillippy, Balancing openness with Indigenous data sovereignty: An opportunity to leave no one behind in the journey to sequence all of life, Proc. Natl. Acad. Sci. U.S.A. 119 (4) e2115860119, https://doi.org/10.1073/pnas.2115860119 (2022).
Publication Date: 2022
Resource Type: Peer reviewed publication
Genomic research through an indigenous lens: Understanding the expectations.
Garrison, N. A., M. Hudson, L. L. Ballantyne, I. Garba, A. Martinez, M. Taualii, L. Arbour, N. R. Caron, and S. C. Rainie. 2019. Genomic research through an indigenous lens: Understanding the expectations. Annual Review of Genomics and Human Genetics 20 (1):495–517. doi: 10.1146/annurev-genom-083118-015434.
Publication Date: 2019
Resource Type: Peer reviewed publication
The Havasupai case and how to make consent forms better.
Lowenberg, K. 2010. The Havasupai case and how to make consent forms better. Stanford Law and Biosciences Blog, April 23. https://law-stanford-edu.proxy.lib.ohio-state.edu/2010/04/23/the-havasupai-case-and-how-to-make-consent-forms-better/
Publication Date: 2010
Resource Type: Blog
Rights, interests and expectations: Indigenous perspectives on unrestricted access to genomic data.
Hudson, M., N. A. Garrison, R. Sterling, N. R. Caron, K. Fox, J. Yracheta, J. Anderson, P. Wilcox, L. Arbour, A. Brown, et al. 2020. Rights, interests and expectations: Indigenous perspectives on unrestricted access to genomic data. Nature Reviews. Genetics 21 (6):377–84. doi: 10.1038/s41576-020-0228-x.
Publication Date: 2020
Resource Type: Peer reviewed publication
Genomic justice for Native Americans: Impact of the Havasupai case on genetic research
Garrison, N. A. 2013. Genomic justice for Native Americans: Impact of the Havasupai case on genetic research. Science, Technology & Human Values 38 (2):201–23. doi: 10.1177/0162243912470009.
Publication Date: 2013
Resource Type: Peer reviewed publication
Indigenous peoples and the morality of the Human Genome Diversity Project
Dodson, M., and R. Williamson. 1999. Indigenous peoples and the morality of the Human Genome Diversity Project. Journal of Medical Ethics 25 (2):204–8. doi: 10.1136/jme.25.2.204.
Publication Date: 1999
Resource Type: Peer reviewed publication
Genomic research through an indigenous lens: understanding the expectations.
Garrison NA, Hudson M, Ballantyne LL, Garba I, Martinez A, Taualii M, Arbour L, Caron NR, Rainie SC. Genomic research through an indigenous lens: understanding the expectations. Annual review of genomics and human genetics. 2019 Aug 31;20(1):495-517.
Publication Date: 2019
Resource Type: Peer reviewed publication
Global Alliance for Genomics and Health: Data Privacy and Security Policy.
"Global Alliance for Genomics and Health. Global Alliance for Genomics and Health: Data Privacy and Security Policy. 2019. Available online: https://www.ga4gh.org/product/data-privacy-and-security-policy/"
Publication Date: 2019
Resource Type: Policy
A Stewardship Framework for the Use of Community Health Data
National Committee on Vital and Health Statistics. A Stewardship Framework for the Use of Community Health Data. December 5, 2012. https://ncvhs.hhs.gov/wp-content/uploads/2014/05/121205lt.pdf
Publication Date: 2012
Resource Type: Report