TOPIC

Native American & Alaska Native

Centering Data Sovereignty, Tribal Values, and Practices for Equity in American Indian and Alaska Native Public Health Systems

"Rhodes KL, Echo-Hawk A, Lewis JP, L. Cresci V, E. Satter D, A. Dillard D. Centering Data Sovereignty, Tribal Values, and Practices for Equity in American Indian and Alaska Native Public Health Systems. Public Health ReportsĀ®. 2023;139(1_suppl):10S-15S. doi:10.1177/00333549231199477 "

Publication Date:   2023
Resource Type:   Peer reviewed publication
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Reforming Tribal Health Data Infrastructure Panel

National Indian Health Board

Publication Date:   2025
Resource Type:   Video
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Healing through Data: Sovereignty and Governance for Indigenous Data Futures

Global Health and Social Medicine

Publication Date:   2023
Resource Type:   Video
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Reaffirming Indigenous data sovereignty in New Mexico as a result of COVID-19

Carson WO, Cordova-Marks FM, Jennings LL, Carroll SR. Reaffirming Indigenous data sovereignty in New Mexico as a result of COVID-19. Front Public Health. 2025 Jun 3;13:1302655. doi: 10.3389/fpubh.2025.1302655. PMID: 40529714; PMCID: PMC12170597.

Publication Date:   2025
Resource Type:   Peer reviewed publication
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Five recommendations for using large-scale publicly available data to advance health among American Indian peoples: the Adolescent Brain and Cognitive Development (ABCD) StudySM as an illustrative case

White EJ, Demuth MJ, Wiglesworth A, Coser AD, Garrett BA, Kominsky TK, Jernigan V, Thompson WK, Paulus M, Aupperle R. Five recommendations for using large-scale publicly available data to advance health among American Indian peoples: the Adolescent Brain and Cognitive Development (ABCD) StudySM as an illustrative case. Neuropsychopharmacology. 2023 Jan;48(2):263-269. doi: 10.1038/s41386-022-01498-9. Epub 2022 Nov 16. PMID: 36385331; PMCID: PMC9751109.

Publication Date:   2022
Resource Type:   Peer reviewed publication
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COVID-19 Pandemic and Indigenous Representation in Public Health Data

Huyser KR, Horse AJY, Kuhlemeier AA, Huyser MR. COVID-19 Pandemic and Indigenous Representation in Public Health Data. Am J Public Health. 2021 Oct;111(S3):S208-S214. doi: 10.2105/AJPH.2021.306415. PMID: 34709868; PMCID: PMC8561074.

Publication Date:   2021
Resource Type:   Peer reviewed publication
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Tribal PH Data Modernization Learning Community on Tribal Public Health Authority

National Indian Health Board

Publication Date:   2024
Resource Type:   Video
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Indigenous Data Governance: Strategies from United States Native Nations

Carroll SR, Rodriguez-Lonebear D, Martinez A. Indigenous Data Governance: Strategies from United States Native Nations. Data Sci J. 2019;18:31. doi: 10.5334/dsj-2019-031. PMID: 34764990; PMCID: PMC8580324.

Publication Date:   2019
Resource Type:   Peer reviewed publication
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The SEEDS of Indigenous population health data linkage

Rowe RK, Carroll SR, Healy C, Rodriguez-Lonebear D, Walker JD. The SEEDS of Indigenous population health data linkage. Int J Popul Data Sci. 2021 Jun 22;6(1):1417. doi: 10.23889/ijpds.v6i1.1417. PMID: 34212119; PMCID: PMC8218891.

Publication Date:   2021
Resource Type:   Peer reviewed publication
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Empowering Equitable Data Use Partnerships and Indigenous Data Sovereignties Amid Pandemic Genomics

Haring RC, Blanchard JW, Korchmaros JD, Lund JR, Haozous EA, Raphaelito J, Hudson M, Tsosie KS. Empowering Equitable Data Use Partnerships and Indigenous Data Sovereignties Amid Pandemic Genomics. Front Public Health. 2021 Nov 11;9:742467. doi: 10.3389/fpubh.2021.742467. PMID: 34858924; PMCID: PMC8632014.

Publication Date:   2021
Resource Type:   Peer reviewed publication
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