TOPIC

Māori

Genomic research through an indigenous lens: understanding the expectations.

Garrison NA, Hudson M, Ballantyne LL, Garba I, Martinez A, Taualii M, Arbour L, Caron NR, Rainie SC. Genomic research through an indigenous lens: understanding the expectations. Annual review of genomics and human genetics. 2019 Aug 31;20(1):495-517.

Publication Date:   2019
Resource Type:   Peer reviewed publication
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Indigenous Health Ethics, An Appeal to Human Rights

Intercultural Dialogue in Bioethics: Volume 3

Publication Date:   2021
Resource Type:   Book
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“There’s ‘consent’ and then there’s consent: Mobilising M¯aori and Indigenous research ethics to problematise the western biomedical model.”

"West-McGruer, K.Y. There’s ‘consent’ and then there’s consent: Mobilising M¯aori and Indigenous research ethics to problematise the western biomedical model. J. Soc. 2020, 56, 184–196."

Publication Date:   2020
Resource Type:   Peer reviewed publication
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“Indigenous data and health: Critical approaches to ‘race’/ethnicity and Indigenous data governance”

Cormack, D.; Reid, P.; Kukutai, T.Y. Indigenous data and health: Critical approaches to ‘race’/ethnicity and Indigenous data governance. Public Health 2019, 172, 116–118.

Publication Date:   2019
Resource Type:   Peer reviewed publication
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Indigneous Data Sovereignty Communique

Maiam nayri Wingara Indigenous Data Sovereignty Collective, the Australian Indigenous Governance Institute & the Lowitja Institute. (2023). Indigenous Data Governance Communique. Available at: https://static1.squarespace.com/static/5b3043afb40b9d20411f3512/t/64f7b64b19d9dd4616bf2c75/1693955660219/Indigenous+Data+Governance+Communique+2023.pdf

Publication Date:   2023
Resource Type:   Report
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Closing the cancer care gap: cancer disparities among Indigenous peoples globally

Go AE, Guinaran RC, Dee EC. Closing the cancer care gap: cancer disparities among Indigenous peoples globally. Lancet Reg Health West Pac. 2025 Apr 6;57:101543. doi: 10.1016/j.lanwpc.2025.101543. PMID: 40242464; PMCID: PMC12002832.

Publication Date:   2025
Resource Type:   Peer reviewed publication
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Indigenous health equity in health register ascertainment and data quality: a narrative review

Wright, K., Tapera, R.M., Stott, N.S. et al. Indigenous health equity in health register ascertainment and data quality: a narrative review. Int J Equity Health 21, 34 (2022). https://doi.org/10.1186/s12939-022-01635-2

Publication Date:   2021
Resource Type:   Peer reviewed publication
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Language improves health and wellbeing in Indigenous communities: A scoping review

Louise Harding, Ryan DeCaire, Ursula Ellis, Karleen Delaurier-Lyle, Julia Schillo, Mark Turin, Language improves health and wellbeing in Indigenous communities: A scoping review, Language and Health (2025) Volume 3, Issue 1, 100047, ISSN 2949-9038

Publication Date:   2025
Resource Type:   Peer reviewed publication
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Issues in Open Data: Indigenous Data Sovereignty.

Carroll, Stephanie, Tahu Kukutai, Maggie Walter, Oscar Luis Figueroa-Rodríguez, Jennifer D. Walker, and Per Axelsson. “Issues in Open Data: Indigenous Data Sovereignty.” In The State of Open Data: Histories and Horizons, 300–319. Cape Town and Ottawa: African Minds, IDRC, 2019. https://idrc-crdi.ca/en/books/state-open-data-histories-and-horizons.

Publication Date:   2019
Resource Type:   Book
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Whāki webinar March 2022 – Whitewashing Health Data is Killing Māori

Te Kotahi Research Institute

Publication Date:   2022
Resource Type:   Video
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