Legal
Extending research protections to tribal communities.
Saunkeah B, Beans JA, Peercy MT, Hiratsuka VY, Spicer P. Extending research protections to tribal communities. The American Journal of Bioethics. 2021 Oct 3;21(10):5-12
Publication Date: 2021
Resource Type: Peer reviewed publication
United Nations Declaration on the Rights of Indigenous Peoples : resolution / adopted by the General Assembly
"UN General Assembly, United Nations Declaration on the Rights of Indigenous Peoples : resolution / adopted by the General Assembly, A/RES/61/295, 2 October 2007, https://www.refworld.org/legal/resolution/unga/2007/en/49353 [accessed 14 July 2025] "
Publication Date: 2007
Resource Type: Policy
Good data practices for Indigenous Data Sovereignty and Governance
Lovett R, Lee V, Kukutai T, Cormack D, Rainie SC, Walker J. Good data practices for Indigenous data sovereignty and governance. Good data. 2019 Jan 23;2019:26-36.
Publication Date: 2018
Resource Type: Book
Tribal Public Health Law, Nation Indian Health Board
N/A
Publication Date: No Year Listed
Resource Type: Webpage
“Indigenous data and health: Critical approaches to ‘race’/ethnicity and Indigenous data governance”
Cormack, D.; Reid, P.; Kukutai, T.Y. Indigenous data and health: Critical approaches to ‘race’/ethnicity and Indigenous data governance. Public Health 2019, 172, 116–118.
Publication Date: 2019
Resource Type: Peer reviewed publication
Indigneous Data Sovereignty Communique
Maiam nayri Wingara Indigenous Data Sovereignty Collective, the Australian Indigenous Governance Institute & the Lowitja Institute. (2023). Indigenous Data Governance Communique. Available at: https://static1.squarespace.com/static/5b3043afb40b9d20411f3512/t/64f7b64b19d9dd4616bf2c75/1693955660219/Indigenous+Data+Governance+Communique+2023.pdf
Publication Date: 2023
Resource Type: Report
Developing a Framework to Guide Genomic Data Sharing and Reciprocal Benefits to Developing Countries and Indigenous Peoples
The O’Neill Institute of National and Global Health Law Georgetown University. Developing a Framework to Guide Genomic Data Sharing and Reciprocal Benefits to Developing Countries and Indigenous Peoples; Georgetown University: Washington, DC, USA, 2009.
Publication Date: 2009
Resource Type: Report
Health Insurance Portability and Accountability Act of 1996 (HIPAA)
Health Insurance Portability and Accountability Act of 1996. 104-191, , 1996-08-21, 110 Stat. 1936 (42 U.S.C. 201 note)
Publication Date: 1996
Resource Type: Policy
A Stewardship Framework for the Use of Community Health Data
National Committee on Vital and Health Statistics. A Stewardship Framework for the Use of Community Health Data. December 5, 2012. https://ncvhs.hhs.gov/wp-content/uploads/2014/05/121205lt.pdf
Publication Date: 2012
Resource Type: Report
The National Congress of American Indians Resolution #KAN-18-011: Support of US Indigenous Data Sovereignty and Inclusion of Tribes inthe Development of Tribal Data Governance Principles
Joe Garcia. The National Congress of American Indians Resolution #KAN-18-011: Support of US Indigenous Data Sovereignty and Inclusion of Tribes in the Development of Tribal Data Governance Principles. 2018 https://archive.ncai.org/resources/resolutions/support-of-us-indigenous-data-sovereignty-and-inclusion-of-tribes-in-the-development-of-tribal-data. Last Accessed: June 30, 2025.
Publication Date: 2018
Resource Type: Policy