Legal
Rights, interests and expectations: Indigenous perspectives on unrestricted access to genomic data.
Hudson, M., N. A. Garrison, R. Sterling, N. R. Caron, K. Fox, J. Yracheta, J. Anderson, P. Wilcox, L. Arbour, A. Brown, et al. 2020. Rights, interests and expectations: Indigenous perspectives on unrestricted access to genomic data. Nature Reviews. Genetics 21 (6):377–84. doi: 10.1038/s41576-020-0228-x.
Publication Date: 2020
Resource Type: Peer reviewed publication
Indigenous peoples and the morality of the Human Genome Diversity Project
Dodson, M., and R. Williamson. 1999. Indigenous peoples and the morality of the Human Genome Diversity Project. Journal of Medical Ethics 25 (2):204–8. doi: 10.1136/jme.25.2.204.
Publication Date: 1999
Resource Type: Peer reviewed publication
DHHS Tribal Consultation (2021)
DHHS (U.S. Department of Health and Human Services). 2021. Tribal consultation (website).
Publication Date: 2021
Resource Type: Policy
DHHS 2018 Common Rule
DHHS (U.S. Department of Health and Human Services). 2018. (Revised January 19, 2017 and Amended January 22, 2018 and June 19, 2018). Code of Federal Regulations: Title 45, Public Welfare; Part 46, Protection of Human Subjects: 2018 Requirements (2018 Common Rule).
Publication Date: 2018
Resource Type: Policy
CIOMS (Council for International Organizations of Medical Sciences) International ethical guidelines for health-related research involving humans.
CIOMS (Council for International Organizations of Medical Sciences). 2017. International ethical guidelines for health-related research involving humans.
Publication Date: 2017
Resource Type: Policy
Tribal IRBs: A framework for understanding research oversight in American Indian and Alaska Native communities.
Around Him, D., T. A. Aguilar, A. Frederick, H. Larsen, M. Seiber, and J. Angal. 2019. Tribal IRBs: A framework for understanding research oversight in American Indian and Alaska Native communities. American Indian and Alaska Native Mental Health Research (Online) 26 (2):71–95. doi: 10.5820/aian.2602.2019.71.
Publication Date: 2019
Resource Type: Peer reviewed publication
Consideration and disclosure of group risks in genomics and other data-centric research: Does the common rule need revision?
Chapman CR, Quinn GP, Natri HM, Berrios C, Dwyer P, Owens K, Heraty S, Caplan AL. Consideration and disclosure of group risks in genomics and other data-centric research: Does the common rule need revision?. The American Journal of Bioethics. 2025 Feb 1;25(2):47-60.
Publication Date: 2025
Resource Type: Peer reviewed publication
Walk softly and listen carefully: Building research relationships with tribal communities.
National Congress of American Indians Policy Research Center and MSU Center for Native Health Partnerships. "‘Walk softly and listen carefully’: Building research relationships with tribal communities." (2012).. (2012). Walk softly and listen carefully: Building research relationships with tribal communities.
Publication Date: 2012
Resource Type: Report
Indigenous research ethics requirements: an examination of six tribal institutional review board applications and processes in the United States. Journal of empirical research on human research ethics.
Kuhn NS, Parker M, Lefthand-Begay C. Indigenous research ethics requirements: an examination of six tribal institutional review board applications and processes in the United States. Journal of empirical research on human research ethics. 2020 Oct;15(4):279-91.
Publication Date: 2020
Resource Type: Peer reviewed publication
Self-Determination in Health Research: An Alaska Native Example of Tribal Ownership and Research Regulation
Hiratsuka VY, Beans JA, Robinson RF, Shaw JL, Sylvester I, Dillard DA. Self-determination in health research: An Alaska Native example of tribal ownership and research regulation. International journal of environmental research and public health. 2017 Nov;14(11):1324.
Publication Date: 2017
Resource Type: Peer reviewed publication