TOPIC

Health Policy

Self-Determination in Health Research: An Alaska Native Example of Tribal Ownership and Research Regulation

Hiratsuka VY, Beans JA, Robinson RF, Shaw JL, Sylvester I, Dillard DA. Self-determination in health research: An Alaska Native example of tribal ownership and research regulation. International journal of environmental research and public health. 2017 Nov;14(11):1324.

Publication Date:   2017
Resource Type:   Peer reviewed publication
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Beyond the Belmont Principles: A Community-Based Approach to Developing an Indigenous Ethics Model and Curriculum for Training Health Researchers Working with American Indian and Alaska Native Communities

Parker M, Pearson C, Donald C, Fisher CB. Beyond the Belmont principles: A community‐based approach to developing an indigenous ethics model and curriculum for training health researchers working with American Indian and Alaska Native communities. American Journal of Community Psychology. 2019 Sep;64(1-2):9-20.

Publication Date:   2019
Resource Type:   Peer reviewed publication
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Extending research protections to tribal communities.

Saunkeah B, Beans JA, Peercy MT, Hiratsuka VY, Spicer P. Extending research protections to tribal communities. The American Journal of Bioethics. 2021 Oct 3;21(10):5-12

Publication Date:   2021
Resource Type:   Peer reviewed publication
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United Nations Declaration on the Rights of Indigenous Peoples : resolution / adopted by the General Assembly

"UN General Assembly, United Nations Declaration on the Rights of Indigenous Peoples : resolution / adopted by the General Assembly, A/RES/61/295, 2 October 2007, https://www.refworld.org/legal/resolution/unga/2007/en/49353 [accessed 14 July 2025] "

Publication Date:   2007
Resource Type:   Policy
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Good data practices for Indigenous Data Sovereignty and Governance

Lovett R, Lee V, Kukutai T, Cormack D, Rainie SC, Walker J. Good data practices for Indigenous data sovereignty and governance. Good data. 2019 Jan 23;2019:26-36.

Publication Date:   2018
Resource Type:   Book
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Genomic research through an indigenous lens: understanding the expectations.

Garrison NA, Hudson M, Ballantyne LL, Garba I, Martinez A, Taualii M, Arbour L, Caron NR, Rainie SC. Genomic research through an indigenous lens: understanding the expectations. Annual review of genomics and human genetics. 2019 Aug 31;20(1):495-517.

Publication Date:   2019
Resource Type:   Peer reviewed publication
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Creating research capacity through a tribally based institutional review board. American journal of public health.

Morton DJ, Proudfit J, Calac D, Portillo M, Lofton-Fitzsimmons G, Molina T, Flores R, Lawson-Risso B, Majel-McCauley R. Creating research capacity through a tribally based institutional review board. American journal of public health. 2013 Dec;103(12):2160-4.

Publication Date:   2013
Resource Type:   Peer reviewed publication
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Moving Forward: Breaking the Cycle of Mistrust Between American Indians and Researchers

Pacheco CM, Daley SM, Brown T, Filippi M, Greiner KA, Daley CM. Moving forward: breaking the cycle of mistrust between American Indians and researchers. American journal of public health. 2013 Dec;103(12):2152-9.

Publication Date:   2013
Resource Type:   Peer reviewed publication
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Research Ethics and Indigenous Communities

Kelley, Allyson, Annie Belcourt-Dittloff, Cheryl Belcourt, and Gordon Belcourt. "Research ethics and indigenous communities." American journal of public health 103, no. 12 (2013): 2146-2152.

Publication Date:   2013
Resource Type:   Peer reviewed publication
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Ethics and community involvement in syntheses concerning American Indian, Alaska Native, or Native Hawaiian health: a systematic review

MO Gribble, DM Around Him - AJOB empirical bioethics, 2014

Publication Date:   2014
Resource Type:   Peer reviewed publication
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