TOPIC

Health Policy

DHHS Tribal Consultation (2021)

DHHS (U.S. Department of Health and Human Services). 2021. Tribal consultation (website).

Publication Date:   2021
Resource Type:   Policy
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DHHS 2018 Common Rule

DHHS (U.S. Department of Health and Human Services). 2018. (Revised January 19, 2017 and Amended January 22, 2018 and June 19, 2018). Code of Federal Regulations: Title 45, Public Welfare; Part 46, Protection of Human Subjects: 2018 Requirements (2018 Common Rule).

Publication Date:   2018
Resource Type:   Policy
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A framework for enhancing ethical genomic research with Indigenous communities

Claw, K. G., M. Z. Anderson, R. L. Begay, K. S. Tsosie, K. Fox, and N. A. Garrison; Summer internship for INdigenous peoples in Genomics (SING) Consortium 2018. A framework for enhancing ethical genomic research with Indigenous communities. Nature Communications 9 (1):2957. doi: 10.1038/s41467-018-05188-3.

Publication Date:   2018
Resource Type:   Peer reviewed publication
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CIOMS (Council for International Organizations of Medical Sciences) International ethical guidelines for health-related research involving humans.

CIOMS (Council for International Organizations of Medical Sciences). 2017. International ethical guidelines for health-related research involving humans.

Publication Date:   2017
Resource Type:   Policy
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Tribal IRBs: A framework for understanding research oversight in American Indian and Alaska Native communities.

Around Him, D., T. A. Aguilar, A. Frederick, H. Larsen, M. Seiber, and J. Angal. 2019. Tribal IRBs: A framework for understanding research oversight in American Indian and Alaska Native communities. American Indian and Alaska Native Mental Health Research (Online) 26 (2):71–95. doi: 10.5820/aian.2602.2019.71.

Publication Date:   2019
Resource Type:   Peer reviewed publication
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Consideration and disclosure of group risks in genomics and other data-centric research: Does the common rule need revision?

Chapman CR, Quinn GP, Natri HM, Berrios C, Dwyer P, Owens K, Heraty S, Caplan AL. Consideration and disclosure of group risks in genomics and other data-centric research: Does the common rule need revision?. The American Journal of Bioethics. 2025 Feb 1;25(2):47-60.

Publication Date:   2025
Resource Type:   Peer reviewed publication
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Racial misclassification of American Indians and Alaska Natives by Indian Health Service contract health service delivery area.

Jim MA, Arias E, Seneca DS, Hoopes MJ, Jim CC, Johnson NJ, Wiggins CL. Racial misclassification of American Indians and Alaska Natives by Indian Health Service contract health service delivery area. American journal of public health. 2014 Jun;104(S3):S295-302.

Publication Date:   2014
Resource Type:   Peer reviewed publication
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Walk softly and listen carefully: Building research relationships with tribal communities.

National Congress of American Indians Policy Research Center and MSU Center for Native Health Partnerships. "‘Walk softly and listen carefully’: Building research relationships with tribal communities." (2012).. (2012). Walk softly and listen carefully: Building research relationships with tribal communities.

Publication Date:   2012
Resource Type:   Report
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Indigenous research ethics requirements: an examination of six tribal institutional review board applications and processes in the United States. Journal of empirical research on human research ethics.

Kuhn NS, Parker M, Lefthand-Begay C. Indigenous research ethics requirements: an examination of six tribal institutional review board applications and processes in the United States. Journal of empirical research on human research ethics. 2020 Oct;15(4):279-91.

Publication Date:   2020
Resource Type:   Peer reviewed publication
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Waimānalo pono research hui: A community–academic partnership to promote Native Hawaiian wellness through culturally grounded and community‐driven research and programming.

Chung‐Do JJ, Ho‐Lastimosa I, Keaulana S, Ho Jr K, Hwang PW, Radovich T, Albinio L, Rogerson I, Keli ‘iholokai L, Deitschman K, Spencer MS. Waimānalo pono research hui: A community–academic partnership to promote Native Hawaiian wellness through culturally grounded and community‐driven research and programming. American journal of community psychology. 2019 Sep;64(1-2):107-17.

Publication Date:   2019
Resource Type:   Peer reviewed publication
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