Data Governance
DHHS 2018 Common Rule
DHHS (U.S. Department of Health and Human Services). 2018. (Revised January 19, 2017 and Amended January 22, 2018 and June 19, 2018). Code of Federal Regulations: Title 45, Public Welfare; Part 46, Protection of Human Subjects: 2018 Requirements (2018 Common Rule).
Publication Date: 2018
Resource Type: Policy
CIOMS (Council for International Organizations of Medical Sciences) International ethical guidelines for health-related research involving humans.
CIOMS (Council for International Organizations of Medical Sciences). 2017. International ethical guidelines for health-related research involving humans.
Publication Date: 2017
Resource Type: Policy
Tribal IRBs: A framework for understanding research oversight in American Indian and Alaska Native communities.
Around Him, D., T. A. Aguilar, A. Frederick, H. Larsen, M. Seiber, and J. Angal. 2019. Tribal IRBs: A framework for understanding research oversight in American Indian and Alaska Native communities. American Indian and Alaska Native Mental Health Research (Online) 26 (2):71–95. doi: 10.5820/aian.2602.2019.71.
Publication Date: 2019
Resource Type: Peer reviewed publication
Walk softly and listen carefully: Building research relationships with tribal communities.
National Congress of American Indians Policy Research Center and MSU Center for Native Health Partnerships. "‘Walk softly and listen carefully’: Building research relationships with tribal communities." (2012).. (2012). Walk softly and listen carefully: Building research relationships with tribal communities.
Publication Date: 2012
Resource Type: Report
Indigenous research ethics requirements: an examination of six tribal institutional review board applications and processes in the United States. Journal of empirical research on human research ethics.
Kuhn NS, Parker M, Lefthand-Begay C. Indigenous research ethics requirements: an examination of six tribal institutional review board applications and processes in the United States. Journal of empirical research on human research ethics. 2020 Oct;15(4):279-91.
Publication Date: 2020
Resource Type: Peer reviewed publication
Self-Determination in Health Research: An Alaska Native Example of Tribal Ownership and Research Regulation
Hiratsuka VY, Beans JA, Robinson RF, Shaw JL, Sylvester I, Dillard DA. Self-determination in health research: An Alaska Native example of tribal ownership and research regulation. International journal of environmental research and public health. 2017 Nov;14(11):1324.
Publication Date: 2017
Resource Type: Peer reviewed publication
United Nations Declaration on the Rights of Indigenous Peoples : resolution / adopted by the General Assembly
"UN General Assembly, United Nations Declaration on the Rights of Indigenous Peoples : resolution / adopted by the General Assembly, A/RES/61/295, 2 October 2007, https://www.refworld.org/legal/resolution/unga/2007/en/49353 [accessed 14 July 2025] "
Publication Date: 2007
Resource Type: Policy
Good data practices for Indigenous Data Sovereignty and Governance
Lovett R, Lee V, Kukutai T, Cormack D, Rainie SC, Walker J. Good data practices for Indigenous data sovereignty and governance. Good data. 2019 Jan 23;2019:26-36.
Publication Date: 2018
Resource Type: Book
Genomic research through an indigenous lens: understanding the expectations.
Garrison NA, Hudson M, Ballantyne LL, Garba I, Martinez A, Taualii M, Arbour L, Caron NR, Rainie SC. Genomic research through an indigenous lens: understanding the expectations. Annual review of genomics and human genetics. 2019 Aug 31;20(1):495-517.
Publication Date: 2019
Resource Type: Peer reviewed publication
Creating research capacity through a tribally based institutional review board. American journal of public health.
Morton DJ, Proudfit J, Calac D, Portillo M, Lofton-Fitzsimmons G, Molina T, Flores R, Lawson-Risso B, Majel-McCauley R. Creating research capacity through a tribally based institutional review board. American journal of public health. 2013 Dec;103(12):2160-4.
Publication Date: 2013
Resource Type: Peer reviewed publication