Data Governance
Governance of Indigenous data in open earth systems science
Jennings, L., Jones, K., Taitingfong, R. et al. Governance of Indigenous data in open earth systems science. Nat Commun 16, 572 (2025). https://doi.org/10.1038/s41467-024-53480-2
Publication Date: 2024
Resource Type: Peer reviewed publication
Genomic research through an indigenous lens: Understanding the expectations.
Garrison, N. A., M. Hudson, L. L. Ballantyne, I. Garba, A. Martinez, M. Taualii, L. Arbour, N. R. Caron, and S. C. Rainie. 2019. Genomic research through an indigenous lens: Understanding the expectations. Annual Review of Genomics and Human Genetics 20 (1):495–517. doi: 10.1146/annurev-genom-083118-015434.
Publication Date: 2019
Resource Type: Peer reviewed publication
The Havasupai case and how to make consent forms better.
Lowenberg, K. 2010. The Havasupai case and how to make consent forms better. Stanford Law and Biosciences Blog, April 23. https://law-stanford-edu.proxy.lib.ohio-state.edu/2010/04/23/the-havasupai-case-and-how-to-make-consent-forms-better/
Publication Date: 2010
Resource Type: Blog
Recognizing and respecting tribal IRBs
Ketchum, S., and R. Meyers. 2018. Recognizing and respecting tribal IRBs. Anthropology News 59 (4):e100–e103. doi: 10.1111/AN.908.
Publication Date: 2018
Resource Type: Report
Beyond Belmont: Ensuring respect for AI/AN communities through Tribal IRBs, laws, and policies.
Hull, S. C., and D. R. Wilson. 2017. Beyond Belmont: Ensuring respect for AI/AN communities through Tribal IRBs, laws, and policies. The American Journal of Bioethics 17 (7):60–2. doi: 10.1080/15265161.2017.1328531.
Publication Date: 2017
Resource Type: Peer reviewed publication
Rights, interests and expectations: Indigenous perspectives on unrestricted access to genomic data.
Hudson, M., N. A. Garrison, R. Sterling, N. R. Caron, K. Fox, J. Yracheta, J. Anderson, P. Wilcox, L. Arbour, A. Brown, et al. 2020. Rights, interests and expectations: Indigenous perspectives on unrestricted access to genomic data. Nature Reviews. Genetics 21 (6):377–84. doi: 10.1038/s41576-020-0228-x.
Publication Date: 2020
Resource Type: Peer reviewed publication
Genomic justice for Native Americans: Impact of the Havasupai case on genetic research
Garrison, N. A. 2013. Genomic justice for Native Americans: Impact of the Havasupai case on genetic research. Science, Technology & Human Values 38 (2):201–23. doi: 10.1177/0162243912470009.
Publication Date: 2013
Resource Type: Peer reviewed publication
The dangers of data colonialism in precision public health
Ferryman, K. 2021. The dangers of data colonialism in precision public health. Global Policy 12 (S6):90–2. doi: 10.1111/1758-5899.12953.
Publication Date: 2021
Resource Type: Peer reviewed publication
Indigenous peoples and the morality of the Human Genome Diversity Project
Dodson, M., and R. Williamson. 1999. Indigenous peoples and the morality of the Human Genome Diversity Project. Journal of Medical Ethics 25 (2):204–8. doi: 10.1136/jme.25.2.204.
Publication Date: 1999
Resource Type: Peer reviewed publication
DHHS Tribal Consultation (2021)
DHHS (U.S. Department of Health and Human Services). 2021. Tribal consultation (website).
Publication Date: 2021
Resource Type: Policy