Policy
Indigenous Knowledge and Data: Overeview and Issues for Congress
Congress.gov. "Indigenous Knowledge and Data: Overview and Issues for Congress." August 25, 2025. https://www.congress.gov/crs-product/R48317.
Publication Date: 2024
Resource Type: Policy
DHHS Tribal Consultation (2021)
DHHS (U.S. Department of Health and Human Services). 2021. Tribal consultation (website).
Publication Date: 2021
Resource Type: Policy
DHHS 2018 Common Rule
DHHS (U.S. Department of Health and Human Services). 2018. (Revised January 19, 2017 and Amended January 22, 2018 and June 19, 2018). Code of Federal Regulations: Title 45, Public Welfare; Part 46, Protection of Human Subjects: 2018 Requirements (2018 Common Rule).
Publication Date: 2018
Resource Type: Policy
CIOMS (Council for International Organizations of Medical Sciences) International ethical guidelines for health-related research involving humans.
CIOMS (Council for International Organizations of Medical Sciences). 2017. International ethical guidelines for health-related research involving humans.
Publication Date: 2017
Resource Type: Policy
United Nations Declaration on the Rights of Indigenous Peoples : resolution / adopted by the General Assembly
"UN General Assembly, United Nations Declaration on the Rights of Indigenous Peoples : resolution / adopted by the General Assembly, A/RES/61/295, 2 October 2007, https://www.refworld.org/legal/resolution/unga/2007/en/49353 [accessed 14 July 2025] "
Publication Date: 2007
Resource Type: Policy
Global Alliance for Genomics and Health: Data Privacy and Security Policy.
"Global Alliance for Genomics and Health. Global Alliance for Genomics and Health: Data Privacy and Security Policy. 2019. Available online: https://www.ga4gh.org/product/data-privacy-and-security-policy/"
Publication Date: 2019
Resource Type: Policy
Health Insurance Portability and Accountability Act of 1996 (HIPAA)
Health Insurance Portability and Accountability Act of 1996. 104-191, , 1996-08-21, 110 Stat. 1936 (42 U.S.C. 201 note)
Publication Date: 1996
Resource Type: Policy
The National Congress of American Indians Resolution #KAN-18-011: Support of US Indigenous Data Sovereignty and Inclusion of Tribes inthe Development of Tribal Data Governance Principles
Joe Garcia. The National Congress of American Indians Resolution #KAN-18-011: Support of US Indigenous Data Sovereignty and Inclusion of Tribes in the Development of Tribal Data Governance Principles. 2018 https://archive.ncai.org/resources/resolutions/support-of-us-indigenous-data-sovereignty-and-inclusion-of-tribes-in-the-development-of-tribal-data. Last Accessed: June 30, 2025.
Publication Date: 2018
Resource Type: Policy
Indigenous Metadata Bundle Communiqué
Riley Taitingfong, Andrew Martinez, Stephanie Russo Carroll, Maui Hudson, and Jane Anderson (2023). “Indigenous Metadata Bundle Communiqué.” Collaboratory for Indigenous Data Governance, ENRICH: Equity for Indigenous Research and Innovation Coordinating Hub, and Tikanga in Technology. DOI: 10.6084/m9.figshare.24353743
Publication Date: 2023
Resource Type: Policy
Ethical conduct in research with Aboriginal and Torres Strait Islander Peoples and communities
NHMRC
Publication Date: 2018
Resource Type: Policy