Policy
Consideration and disclosure of group risks in genomics and other data-centric research: Does the common rule need revision?
Chapman CR, Quinn GP, Natri HM, Berrios C, Dwyer P, Owens K, Heraty S, Caplan AL. Consideration and disclosure of group risks in genomics and other data-centric research: Does the common rule need revision?. The American Journal of Bioethics. 2025 Feb 1;25(2):47-60.
Publication Date: 2025
Resource Type: Peer reviewed publication
Walk softly and listen carefully: Building research relationships with tribal communities.
National Congress of American Indians Policy Research Center and MSU Center for Native Health Partnerships. "‘Walk softly and listen carefully’: Building research relationships with tribal communities." (2012).. (2012). Walk softly and listen carefully: Building research relationships with tribal communities.
Publication Date: 2012
Resource Type: Report
Indigenous research ethics requirements: an examination of six tribal institutional review board applications and processes in the United States. Journal of empirical research on human research ethics.
Kuhn NS, Parker M, Lefthand-Begay C. Indigenous research ethics requirements: an examination of six tribal institutional review board applications and processes in the United States. Journal of empirical research on human research ethics. 2020 Oct;15(4):279-91.
Publication Date: 2020
Resource Type: Peer reviewed publication
Self-Determination in Health Research: An Alaska Native Example of Tribal Ownership and Research Regulation
Hiratsuka VY, Beans JA, Robinson RF, Shaw JL, Sylvester I, Dillard DA. Self-determination in health research: An Alaska Native example of tribal ownership and research regulation. International journal of environmental research and public health. 2017 Nov;14(11):1324.
Publication Date: 2017
Resource Type: Peer reviewed publication
Extending research protections to tribal communities.
Saunkeah B, Beans JA, Peercy MT, Hiratsuka VY, Spicer P. Extending research protections to tribal communities. The American Journal of Bioethics. 2021 Oct 3;21(10):5-12
Publication Date: 2021
Resource Type: Peer reviewed publication
Good data practices for Indigenous Data Sovereignty and Governance
Lovett R, Lee V, Kukutai T, Cormack D, Rainie SC, Walker J. Good data practices for Indigenous data sovereignty and governance. Good data. 2019 Jan 23;2019:26-36.
Publication Date: 2018
Resource Type: Book
Creating research capacity through a tribally based institutional review board. American journal of public health.
Morton DJ, Proudfit J, Calac D, Portillo M, Lofton-Fitzsimmons G, Molina T, Flores R, Lawson-Risso B, Majel-McCauley R. Creating research capacity through a tribally based institutional review board. American journal of public health. 2013 Dec;103(12):2160-4.
Publication Date: 2013
Resource Type: Peer reviewed publication
Research Ethics and Indigenous Communities
Kelley, Allyson, Annie Belcourt-Dittloff, Cheryl Belcourt, and Gordon Belcourt. "Research ethics and indigenous communities." American journal of public health 103, no. 12 (2013): 2146-2152.
Publication Date: 2013
Resource Type: Peer reviewed publication
Federal Policies That Contribute to Racial and Ethnic Health Inequities and Potential Solutions for Indigenous Children, Families, and Communities
Gordon, H. S. J., Around Him, D., & Jordan, E. (2022). Federal policies that contribute to racial and ethnic health inequities and potential solutions for Indigenous children, families, and communities. Comments to the National Academy of Sciences Ad Hoc Committee on Racial and Ethnic Health Inequities. Child Trends.
Publication Date: 2022
Resource Type: Unpublished publication
Exploring pathways to trust: A tribal perspective on data sharing
"James, R.; Tsosie, R.; Sahota, P.; Parker, M.; Dillard, D.; Sylvester, I.; Lewis, J.; Klejka, J.; Muzquiz, L.; Olsen, P.; et al. Exploring pathways to trust: A tribal perspective on data sharing. Genet. Med. 2014, 16, 820–826."
Publication Date: 2014
Resource Type: Peer reviewed publication