Policy
Recognizing and respecting tribal IRBs
Ketchum, S., and R. Meyers. 2018. Recognizing and respecting tribal IRBs. Anthropology News 59 (4):e100–e103. doi: 10.1111/AN.908.
Publication Date: 2018
Resource Type: Report
Beyond Belmont: Ensuring respect for AI/AN communities through Tribal IRBs, laws, and policies.
Hull, S. C., and D. R. Wilson. 2017. Beyond Belmont: Ensuring respect for AI/AN communities through Tribal IRBs, laws, and policies. The American Journal of Bioethics 17 (7):60–2. doi: 10.1080/15265161.2017.1328531.
Publication Date: 2017
Resource Type: Peer reviewed publication
Rights, interests and expectations: Indigenous perspectives on unrestricted access to genomic data.
Hudson, M., N. A. Garrison, R. Sterling, N. R. Caron, K. Fox, J. Yracheta, J. Anderson, P. Wilcox, L. Arbour, A. Brown, et al. 2020. Rights, interests and expectations: Indigenous perspectives on unrestricted access to genomic data. Nature Reviews. Genetics 21 (6):377–84. doi: 10.1038/s41576-020-0228-x.
Publication Date: 2020
Resource Type: Peer reviewed publication
The dangers of data colonialism in precision public health
Ferryman, K. 2021. The dangers of data colonialism in precision public health. Global Policy 12 (S6):90–2. doi: 10.1111/1758-5899.12953.
Publication Date: 2021
Resource Type: Peer reviewed publication
Indigenous peoples and the morality of the Human Genome Diversity Project
Dodson, M., and R. Williamson. 1999. Indigenous peoples and the morality of the Human Genome Diversity Project. Journal of Medical Ethics 25 (2):204–8. doi: 10.1136/jme.25.2.204.
Publication Date: 1999
Resource Type: Peer reviewed publication
DHHS Tribal Consultation (2021)
DHHS (U.S. Department of Health and Human Services). 2021. Tribal consultation (website).
Publication Date: 2021
Resource Type: Policy
DHHS 2018 Common Rule
DHHS (U.S. Department of Health and Human Services). 2018. (Revised January 19, 2017 and Amended January 22, 2018 and June 19, 2018). Code of Federal Regulations: Title 45, Public Welfare; Part 46, Protection of Human Subjects: 2018 Requirements (2018 Common Rule).
Publication Date: 2018
Resource Type: Policy
A framework for enhancing ethical genomic research with Indigenous communities
Claw, K. G., M. Z. Anderson, R. L. Begay, K. S. Tsosie, K. Fox, and N. A. Garrison; Summer internship for INdigenous peoples in Genomics (SING) Consortium 2018. A framework for enhancing ethical genomic research with Indigenous communities. Nature Communications 9 (1):2957. doi: 10.1038/s41467-018-05188-3.
Publication Date: 2018
Resource Type: Peer reviewed publication
CIOMS (Council for International Organizations of Medical Sciences) International ethical guidelines for health-related research involving humans.
CIOMS (Council for International Organizations of Medical Sciences). 2017. International ethical guidelines for health-related research involving humans.
Publication Date: 2017
Resource Type: Policy
Tribal IRBs: A framework for understanding research oversight in American Indian and Alaska Native communities.
Around Him, D., T. A. Aguilar, A. Frederick, H. Larsen, M. Seiber, and J. Angal. 2019. Tribal IRBs: A framework for understanding research oversight in American Indian and Alaska Native communities. American Indian and Alaska Native Mental Health Research (Online) 26 (2):71–95. doi: 10.5820/aian.2602.2019.71.
Publication Date: 2019
Resource Type: Peer reviewed publication