TOPIC

Ethics

INDIGENOUS DATA SOVEREIGNTY

ORS & ORPI

Publication Date:   2025
Resource Type:   Video
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Unpacking Indigenous Data, Indigenous Data Sovereignty and Indigenous Data Governance

Australian Data Science Network

Publication Date:   2024
Resource Type:   Video
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Operationalizing the CARE and FAIR Principles for Indigenous data futures

Carroll, S.R., Herczog, E., Hudson, M. et al. Operationalizing the CARE and FAIR Principles for Indigenous data futures. Sci Data 8, 108 (2021). https://doi.org/10.1038/s41597-021-00892-0

Publication Date:   2020
Resource Type:   Peer reviewed publication
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A Healthy and Just World: What would it take to increase public health in Indigenous communities?

Columbia Public Health

Publication Date:   2024
Resource Type:   Video
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Competing interests: digital health and indigenous data sovereignty

Cordes, A., Bak, M., Lyndon, M. et al. Competing interests: digital health and indigenous data sovereignty. npj Digit. Med. 7, 178 (2024). https://doi.org/10.1038/s41746-024-01171-z

Publication Date:   2024
Resource Type:   Peer reviewed publication
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VISIONING THE FUTURE: FIRST NATIONS, INUIT, & MÉTIS POPULATION AND PUBLIC HEALTH

National Collaborating Centre for Indigenous Health

Publication Date:   2021
Resource Type:   Report
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Healing through Data: Sovereignty and Governance for Indigenous Data Futures

Global Health and Social Medicine

Publication Date:   2023
Resource Type:   Video
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Caring for Indigenous Data to Evaluate the Benefits of Indigenous Environmental Programs

Robinson CJ, Kong T, Coates R, Watson I, Stokes C, Pert P, McConnell A, Chen C. Caring for Indigenous Data to Evaluate the Benefits of Indigenous Environmental Programs. Environ Manage. 2021 Aug;68(2):160-169. doi: 10.1007/s00267-021-01485-8. Epub 2021 May 27. PMID: 34046755.

Publication Date:   2021
Resource Type:   Peer reviewed publication
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Australian Aboriginal and Torres Strait Islander Health Information: Progress, Pitfalls, and Prospects

Ring I, Griffiths K. Australian Aboriginal and Torres Strait Islander Health Information: Progress, Pitfalls, and Prospects. Int J Environ Res Public Health. 2021 Sep 29;18(19):10274. doi: 10.3390/ijerph181910274. PMID: 34639572; PMCID: PMC8508232.

Publication Date:   2021
Resource Type:   Peer reviewed publication
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Five recommendations for using large-scale publicly available data to advance health among American Indian peoples: the Adolescent Brain and Cognitive Development (ABCD) StudySM as an illustrative case

White EJ, Demuth MJ, Wiglesworth A, Coser AD, Garrett BA, Kominsky TK, Jernigan V, Thompson WK, Paulus M, Aupperle R. Five recommendations for using large-scale publicly available data to advance health among American Indian peoples: the Adolescent Brain and Cognitive Development (ABCD) StudySM as an illustrative case. Neuropsychopharmacology. 2023 Jan;48(2):263-269. doi: 10.1038/s41386-022-01498-9. Epub 2022 Nov 16. PMID: 36385331; PMCID: PMC9751109.

Publication Date:   2022
Resource Type:   Peer reviewed publication
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