Ethics
CIOMS (Council for International Organizations of Medical Sciences) International ethical guidelines for health-related research involving humans.
CIOMS (Council for International Organizations of Medical Sciences). 2017. International ethical guidelines for health-related research involving humans.
Publication Date: 2017
Resource Type: Policy
Tribal IRBs: A framework for understanding research oversight in American Indian and Alaska Native communities.
Around Him, D., T. A. Aguilar, A. Frederick, H. Larsen, M. Seiber, and J. Angal. 2019. Tribal IRBs: A framework for understanding research oversight in American Indian and Alaska Native communities. American Indian and Alaska Native Mental Health Research (Online) 26 (2):71–95. doi: 10.5820/aian.2602.2019.71.
Publication Date: 2019
Resource Type: Peer reviewed publication
Consideration and disclosure of group risks in genomics and other data-centric research: Does the common rule need revision?
Chapman CR, Quinn GP, Natri HM, Berrios C, Dwyer P, Owens K, Heraty S, Caplan AL. Consideration and disclosure of group risks in genomics and other data-centric research: Does the common rule need revision?. The American Journal of Bioethics. 2025 Feb 1;25(2):47-60.
Publication Date: 2025
Resource Type: Peer reviewed publication
Indigenous Metadata Bundle Communiqué
Riley Taitingfong, Andrew Martinez, Stephanie Russo Carroll, Maui Hudson, and Jane Anderson (2023). “Indigenous Metadata Bundle Communiqué.” Collaboratory for Indigenous Data Governance, ENRICH: Equity for Indigenous Research and Innovation Coordinating Hub, and Tikanga in Technology. DOI: 10.6084/m9.figshare.24353743
Publication Date: 2023
Resource Type: Policy
Dying in Darkness: Deviations From Data Sharing Ethics in the US Public Health System and the Data Genocide of American Indian and Alaska Native Communities
Schmit CD, O’Connell MC, Shewbrooks S, Abourezk C, Cochlin FJ, Doerr M, Kum HC Dying in Darkness: Deviations From Data Sharing Ethics in the US Public Health System and the Data Genocide of American Indian and Alaska Native Communities J Med Internet Res 2025;27:e70983
Publication Date: 2025
Resource Type: Peer reviewed publication
Indigenous data sovereignty and COVID-19 data issues for American Indian and Alaska Native Tribes and populations
Aggie J. Yellow Horse & Kimberly R. Huyser, 2022. "Indigenous data sovereignty and COVID-19 data issues for American Indian and Alaska Native Tribes and populations," Journal of Population Research, Springer, vol. 39(4), pages 527-531, December.
Publication Date: 2022
Resource Type: Web Article
We cannot repeat history again: a call to action to centre indigenous leadership as we prepare for the next pandemic
Crooks, K., Ahmed, F., Liberda, E.N. et al. We cannot repeat history again: a call to action to centre indigenous leadership as we prepare for the next pandemic. Int J Equity Health 24, 24 (2025). https://doi.org/10.1186/s12939-025-02387-5
Publication Date: 2025
Resource Type: Peer reviewed publication
GIDA-RDA COVID-19 Guidelines for Data Sharing Respecting Indigenous Data Sovereignty
RDA COVID-19 Working Group. Recommendations and Guidelines on data sharing. Research Data Alliance. 2020. DOI: https://doi.org/10.15497/RDA00052
Publication Date: 2020
Resource Type: Report
Advancing American Indian & Alaska Native Data Equity
Gwynne Evans-Lomayesva, Jae June Lee, & Cara Brumfield. “Advancing American Indian & Alaska Native Data Equity: Representation in Federal Data Collections.” Georgetown Center on Poverty and Inequality, November 2022. Available at https://www.georgetownpoverty.org/issues/advancingamerican-indian-alaska-native-data-equity/.
Publication Date: 2022
Resource Type: Report
Explaining COVID-19 related mortality disparities in American Indians and Alaska Natives
Slutske, W.S., Conner, K.L., Kirsch, J.A. et al. Explaining COVID-19 related mortality disparities in American Indians and Alaska Natives. Sci Rep 13, 20974 (2023). https://doi.org/10.1038/s41598-023-48260-9
Publication Date: 2023
Resource Type: Peer reviewed publication