Community Engagement
Exploring pathways to trust: A tribal perspective on data sharing
"James, R.; Tsosie, R.; Sahota, P.; Parker, M.; Dillard, D.; Sylvester, I.; Lewis, J.; Klejka, J.; Muzquiz, L.; Olsen, P.; et al. Exploring pathways to trust: A tribal perspective on data sharing. Genet. Med. 2014, 16, 820–826."
Publication Date: 2014
Resource Type: Peer reviewed publication
“There’s ‘consent’ and then there’s consent: Mobilising M¯aori and Indigenous research ethics to problematise the western biomedical model.”
"West-McGruer, K.Y. There’s ‘consent’ and then there’s consent: Mobilising M¯aori and Indigenous research ethics to problematise the western biomedical model. J. Soc. 2020, 56, 184–196."
Publication Date: 2020
Resource Type: Peer reviewed publication
Indigneous Data Sovereignty Communique
Maiam nayri Wingara Indigenous Data Sovereignty Collective, the Australian Indigenous Governance Institute & the Lowitja Institute. (2023). Indigenous Data Governance Communique. Available at: https://static1.squarespace.com/static/5b3043afb40b9d20411f3512/t/64f7b64b19d9dd4616bf2c75/1693955660219/Indigenous+Data+Governance+Communique+2023.pdf
Publication Date: 2023
Resource Type: Report
A Stewardship Framework for the Use of Community Health Data
National Committee on Vital and Health Statistics. A Stewardship Framework for the Use of Community Health Data. December 5, 2012. https://ncvhs.hhs.gov/wp-content/uploads/2014/05/121205lt.pdf
Publication Date: 2012
Resource Type: Report
The National Congress of American Indians Resolution #KAN-18-011: Support of US Indigenous Data Sovereignty and Inclusion of Tribes inthe Development of Tribal Data Governance Principles
Joe Garcia. The National Congress of American Indians Resolution #KAN-18-011: Support of US Indigenous Data Sovereignty and Inclusion of Tribes in the Development of Tribal Data Governance Principles. 2018 https://archive.ncai.org/resources/resolutions/support-of-us-indigenous-data-sovereignty-and-inclusion-of-tribes-in-the-development-of-tribal-data. Last Accessed: June 30, 2025.
Publication Date: 2018
Resource Type: Policy
Network for Public Health Law. Fact Sheet: Data Governance Strategies for State and Tribal nations.
Network for Public Health Law. Fact Sheet: Data Governance Strategies for State and Tribal nations. 2020. Available at: https://www.networkforphl.org/wp-content/uploads/2020/09/Data-Governance-Strategies-for-States-and-Tribal-Nations-.pdf.
Publication Date: 2020
Resource Type: Report
Connection to the land as a youth-identified social determinant of Indigenous Peoples’ health
Lines LA; Yellowknives Dene First Nation Wellness Division; Jardine CG. Connection to the land as a youth-identified social determinant of Indigenous Peoples' health. BMC Public Health. 2019 Feb 11;19(1):176. doi: 10.1186/s12889-018-6383-8. PMID: 30744592; PMCID: PMC6371607.
Publication Date: 2019
Resource Type: Peer reviewed publication
One health approach to toxocariasis in Brazilian indigenous populations, their dogs, and soil contamination
Santarém, V. A., Doline, F. R., Ferreira, I. B., Farinhas, J. H., Biondo, L. M., de Souza Filho, R. T., ... & Biondo, A. W. (2023). One health approach to toxocariasis in Brazilian indigenous populations, their dogs, and soil contamination. Frontiers in Public Health, 11, 1220001.
Publication Date: 2023
Resource Type: Peer reviewed publication
Convergence Insufficiency, Accommodative Insufficiency, Visual Symptoms, and Astigmatism in Tohono O’odham Students
Davis, A. L., Harvey, E. M., Twelker, J. D., Miller, J. M., Leonard-Green, T., & Campus, I. (2016). Convergence insufficiency, accommodative insufficiency, visual symptoms, and astigmatism in Tohono O’odham students. Journal of Ophthalmology, 2016(1), 6963976.
Publication Date: 2016
Resource Type: Peer reviewed publication
Uranium and arsenic unregulated water issues on Navajo lands
Ingram, J. C., Jones, L., Credo, J., & Rock, T. (2020). Uranium and arsenic unregulated water issues on Navajo lands. Journal of Vacuum Science & Technology A, 38(3).
Publication Date: 2020
Resource Type: Peer reviewed publication