Health Equity & Social Determinants of Health
Exploring pathways to trust: A tribal perspective on data sharing
"James, R.; Tsosie, R.; Sahota, P.; Parker, M.; Dillard, D.; Sylvester, I.; Lewis, J.; Klejka, J.; Muzquiz, L.; Olsen, P.; et al. Exploring pathways to trust: A tribal perspective on data sharing. Genet. Med. 2014, 16, 820–826."
Publication Date: 2014
Resource Type: Peer reviewed publication
Indigneous Data Sovereignty Communique
Maiam nayri Wingara Indigenous Data Sovereignty Collective, the Australian Indigenous Governance Institute & the Lowitja Institute. (2023). Indigenous Data Governance Communique. Available at: https://static1.squarespace.com/static/5b3043afb40b9d20411f3512/t/64f7b64b19d9dd4616bf2c75/1693955660219/Indigenous+Data+Governance+Communique+2023.pdf
Publication Date: 2023
Resource Type: Report
Developing a Framework to Guide Genomic Data Sharing and Reciprocal Benefits to Developing Countries and Indigenous Peoples
The O’Neill Institute of National and Global Health Law Georgetown University. Developing a Framework to Guide Genomic Data Sharing and Reciprocal Benefits to Developing Countries and Indigenous Peoples; Georgetown University: Washington, DC, USA, 2009.
Publication Date: 2009
Resource Type: Report
Best Practices for American Indian and Alaska Native Data Collection
Urban Indian Health Institute. Best Practices for American Indian and Alaska Native Data Collection. Updated on August 26, 2020. https://www.uihi.org/resources/best-practices-for-american-indian-and-alaska-native-data-collection/Last Accessed: June 30, 2025.
Publication Date: 2020
Resource Type: Web Article
Federal Indian Law as Structural Determinant of Health
Hoss A. Federal Indian Law as a Structural Determinant of Health. J Law Med Ethics. 2019 Dec;47(4_suppl):34-42. doi: 10.1177/1073110519898041. PMID: 31955695.
Publication Date: 2019
Resource Type: Peer reviewed publication
Centering Data Sovereignty, Tribal Values, and Practices for Equity in American Indian and Alaska Native Public Health Systems
"Rhodes KL, Echo-Hawk A, Lewis JP, L. Cresci V, E. Satter D, A. Dillard D. Centering Data Sovereignty, Tribal Values, and Practices for Equity in American Indian and Alaska Native Public Health Systems. Public Health Reports®. 2023;139(1_suppl):10S-15S. doi:10.1177/00333549231199477 "
Publication Date: 2023
Resource Type: Peer reviewed publication
Equity and Inclusion in Assessing Hereditary Cancer Risk: Insights From Excluded Communities, Structured Interviews, and Population Genetics
Geary J, Gerido LH, Gutierrez AM, Dale KJ. Equity and Inclusion in Assessing Hereditary Cancer Risk: Insights From Excluded Communities, Structured Interviews, and Population Genetics. Cancer Control. 2025 Jan-Dec;32:10732748251355825. doi: 10.1177/10732748251355825. Epub 2025 Jun 30. PMID: 40588805; PMCID: PMC12209571.
Publication Date: 2025
Resource Type: Peer reviewed publication
End-of Life Care Disparities Experienced by American Indian and Alaska Natives Peoples: An Analysis of Data from the 2019 Medicare Master Beneficiary Summary File
Anderson E, Goins RT, Abdulsalam R, Jiang L, O'Connell J. End-of Life Care Disparities Experienced by American Indian and Alaska Natives Peoples: An Analysis of Data from the 2019 Medicare Master Beneficiary Summary File. J Palliat Med. 2025 May 28. doi: 10.1089/jpm.2024.0481. Epub ahead of print. PMID: 40425038.
Publication Date: 2025
Resource Type: Peer reviewed publication
Improved cancer survival in the Northern Territory: identifying progress and disparities for Aboriginal peoples, 1991-2020
Boyd R, Charakidis M, Burgess CP, Dugdale S, Castillon Jawoyn Katherine Region Nt C, Sutandar D, Wright A. Improved cancer survival in the Northern Territory: identifying progress and disparities for Aboriginal peoples, 1991-2020. Med J Aust. 2025 Jun 2;222(10):517-523. doi: 10.5694/mja2.52656. Epub 2025 Apr 21. PMID: 40259612.
Publication Date: 2025
Resource Type: Peer reviewed publication
Closing the cancer care gap: cancer disparities among Indigenous peoples globally
Go AE, Guinaran RC, Dee EC. Closing the cancer care gap: cancer disparities among Indigenous peoples globally. Lancet Reg Health West Pac. 2025 Apr 6;57:101543. doi: 10.1016/j.lanwpc.2025.101543. PMID: 40242464; PMCID: PMC12002832.
Publication Date: 2025
Resource Type: Peer reviewed publication