TOPIC

Epidemiology

Rights, interests and expectations: Indigenous perspectives on unrestricted access to genomic data.

Hudson, M., N. A. Garrison, R. Sterling, N. R. Caron, K. Fox, J. Yracheta, J. Anderson, P. Wilcox, L. Arbour, A. Brown, et al. 2020. Rights, interests and expectations: Indigenous perspectives on unrestricted access to genomic data. Nature Reviews. Genetics 21 (6):377–84. doi: 10.1038/s41576-020-0228-x.

Publication Date:   2020
Resource Type:   Peer reviewed publication
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United Nations Declaration on the Rights of Indigenous Peoples : resolution / adopted by the General Assembly

"UN General Assembly, United Nations Declaration on the Rights of Indigenous Peoples : resolution / adopted by the General Assembly, A/RES/61/295, 2 October 2007, https://www.refworld.org/legal/resolution/unga/2007/en/49353 [accessed 14 July 2025] "

Publication Date:   2007
Resource Type:   Policy
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Network for Public Health Law: Tribal Public Health Law Resource Table

No citation available

Publication Date:   2021
Resource Type:   Report
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Best Practices for American Indian and Alaska Native Data Collection

Urban Indian Health Institute. Best Practices for American Indian and Alaska Native Data Collection. Updated on August 26, 2020. https://www.uihi.org/resources/best-practices-for-american-indian-and-alaska-native-data-collection/Last Accessed: June 30, 2025.

Publication Date:   2020
Resource Type:   Web Article
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Centering Data Sovereignty, Tribal Values, and Practices for Equity in American Indian and Alaska Native Public Health Systems

"Rhodes KL, Echo-Hawk A, Lewis JP, L. Cresci V, E. Satter D, A. Dillard D. Centering Data Sovereignty, Tribal Values, and Practices for Equity in American Indian and Alaska Native Public Health Systems. Public Health Reports®. 2023;139(1_suppl):10S-15S. doi:10.1177/00333549231199477 "

Publication Date:   2023
Resource Type:   Peer reviewed publication
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Indigenous Peoples and the Australian census: value, trust, and participation

Williamson, Bhiamie & Prehn, Jacob & Walter, Maggie & Lovett, Raymond & Bodkin-Andrews, Gawaian & Maher, Bobby & Mat, Vanessa & Jones, Roxanne. (2021). Indigenous Peoples and the Australian census: value, trust, and participation. Australian Population Studies. 5. 1-14. 10.37970/aps.v5i2.89.

Publication Date:   2021
Resource Type:   Peer reviewed publication
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How Should Epidemiologists Respond to Data Genocide?

Abigail Echo-Hawk, MAa; Sofia Locklear, PhDb;Sarah McNally, MPHc; et al

Publication Date:   2024
Resource Type:   Course
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KDD 2020: D&I: Models of Data Governance and Advancing Indigenous Genomic Data Sovereignty

Association for computing machinery

Publication Date:   2021
Resource Type:   Video
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Indigenous data protection in wastewater surveillance: balancing public health monitoring with privacy rights

Perreault ML, Goodridge LD. Indigenous data protection in wastewater surveillance: balancing public health monitoring with privacy rights. Genomic Psychiatry. 2025;1(3):22-27. doi: 10.61373/gp025p.0008

Publication Date:   2025
Resource Type:   Peer reviewed publication
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Indigenous Environmental Data Justice: Confronting Colonial Data and Activating Indigenous Sovereignty

Yanchapaxi, M. F., & Murphy, M. (2025). Indigenous Environmental Data Justice: Confronting Colonial Data and Activating Indigenous Sovereignty. Science, Technology, & Human Values, 0(0). https://doi.org/10.1177/01622439251343837

Publication Date:   2025
Resource Type:   Peer reviewed publication
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