Peer reviewed publication
Rights, interests and expectations: Indigenous perspectives on unrestricted access to genomic data.
Hudson, M., N. A. Garrison, R. Sterling, N. R. Caron, K. Fox, J. Yracheta, J. Anderson, P. Wilcox, L. Arbour, A. Brown, et al. 2020. Rights, interests and expectations: Indigenous perspectives on unrestricted access to genomic data. Nature Reviews. Genetics 21 (6):377–84. doi: 10.1038/s41576-020-0228-x.
Publication Date: 2020
Resource Type: Peer reviewed publication
Genomic justice for Native Americans: Impact of the Havasupai case on genetic research
Garrison, N. A. 2013. Genomic justice for Native Americans: Impact of the Havasupai case on genetic research. Science, Technology & Human Values 38 (2):201–23. doi: 10.1177/0162243912470009.
Publication Date: 2013
Resource Type: Peer reviewed publication
The dangers of data colonialism in precision public health
Ferryman, K. 2021. The dangers of data colonialism in precision public health. Global Policy 12 (S6):90–2. doi: 10.1111/1758-5899.12953.
Publication Date: 2021
Resource Type: Peer reviewed publication
Indigenous peoples and the morality of the Human Genome Diversity Project
Dodson, M., and R. Williamson. 1999. Indigenous peoples and the morality of the Human Genome Diversity Project. Journal of Medical Ethics 25 (2):204–8. doi: 10.1136/jme.25.2.204.
Publication Date: 1999
Resource Type: Peer reviewed publication
A framework for enhancing ethical genomic research with Indigenous communities
Claw, K. G., M. Z. Anderson, R. L. Begay, K. S. Tsosie, K. Fox, and N. A. Garrison; Summer internship for INdigenous peoples in Genomics (SING) Consortium 2018. A framework for enhancing ethical genomic research with Indigenous communities. Nature Communications 9 (1):2957. doi: 10.1038/s41467-018-05188-3.
Publication Date: 2018
Resource Type: Peer reviewed publication
Tribal IRBs: A framework for understanding research oversight in American Indian and Alaska Native communities.
Around Him, D., T. A. Aguilar, A. Frederick, H. Larsen, M. Seiber, and J. Angal. 2019. Tribal IRBs: A framework for understanding research oversight in American Indian and Alaska Native communities. American Indian and Alaska Native Mental Health Research (Online) 26 (2):71–95. doi: 10.5820/aian.2602.2019.71.
Publication Date: 2019
Resource Type: Peer reviewed publication
Consideration and disclosure of group risks in genomics and other data-centric research: Does the common rule need revision?
Chapman CR, Quinn GP, Natri HM, Berrios C, Dwyer P, Owens K, Heraty S, Caplan AL. Consideration and disclosure of group risks in genomics and other data-centric research: Does the common rule need revision?. The American Journal of Bioethics. 2025 Feb 1;25(2):47-60.
Publication Date: 2025
Resource Type: Peer reviewed publication
Racial misclassification of American Indians and Alaska Natives by Indian Health Service contract health service delivery area.
Jim MA, Arias E, Seneca DS, Hoopes MJ, Jim CC, Johnson NJ, Wiggins CL. Racial misclassification of American Indians and Alaska Natives by Indian Health Service contract health service delivery area. American journal of public health. 2014 Jun;104(S3):S295-302.
Publication Date: 2014
Resource Type: Peer reviewed publication
Indigenous research ethics requirements: an examination of six tribal institutional review board applications and processes in the United States. Journal of empirical research on human research ethics.
Kuhn NS, Parker M, Lefthand-Begay C. Indigenous research ethics requirements: an examination of six tribal institutional review board applications and processes in the United States. Journal of empirical research on human research ethics. 2020 Oct;15(4):279-91.
Publication Date: 2020
Resource Type: Peer reviewed publication
Waimānalo pono research hui: A community–academic partnership to promote Native Hawaiian wellness through culturally grounded and community‐driven research and programming.
Chung‐Do JJ, Ho‐Lastimosa I, Keaulana S, Ho Jr K, Hwang PW, Radovich T, Albinio L, Rogerson I, Keli ‘iholokai L, Deitschman K, Spencer MS. Waimānalo pono research hui: A community–academic partnership to promote Native Hawaiian wellness through culturally grounded and community‐driven research and programming. American journal of community psychology. 2019 Sep;64(1-2):107-17.
Publication Date: 2019
Resource Type: Peer reviewed publication